Author Topic: Did Mary Stuart & descendants have porphyria?  (Read 39007 times)

0 Members and 1 Guest are viewing this topic.

Offline ChristineM

  • Moderator
  • Velikye Knyaz
  • *****
  • Posts: 2882
    • View Profile
Re: Did Mary Stuart & descendants have porphyr
« Reply #15 on: January 09, 2005, 03:12:02 PM »
Dear Martyn

Touchee!

bluetoria

  • Guest
Re: Did Mary Stuart & descendants have porphyr
« Reply #16 on: January 09, 2005, 05:06:41 PM »
Thank you, Tsaria, for your interesting information.

Offline ChristineM

  • Moderator
  • Velikye Knyaz
  • *****
  • Posts: 2882
    • View Profile
Re: Did Mary Stuart & descendants have porphyr
« Reply #17 on: January 09, 2005, 05:34:48 PM »
Bluetoria - you are very welcome.

tsaria

Offline AGRBear

  • Velikye Knyaz
  • ****
  • Posts: 6611
  • The road to truth is the best one to travel.
    • View Profile
    • Romanov's  Russia
Re: Did Mary Stuart & descendants have porphyr
« Reply #18 on: January 09, 2005, 06:30:07 PM »
Is/Are there any other possible dieases and/or  mental disorders other than porphyria which would give a person the same symtoms?

AGRBear
« Last Edit: December 31, 1969, 06:00:00 PM by AGRBear »
"What is true by lamplight is not always true by sunlight."

Joubert, Pensees, No. 152

bluetoria

  • Guest
Re: Did Mary Stuart & descendants have porphyr
« Reply #19 on: January 09, 2005, 06:31:59 PM »
Thyroxine deficiency?

Offline AGRBear

  • Velikye Knyaz
  • ****
  • Posts: 6611
  • The road to truth is the best one to travel.
    • View Profile
    • Romanov's  Russia
Re: Did Mary Stuart & descendants have porphyria?
« Reply #20 on: January 09, 2005, 06:47:01 PM »
I went and looked up porphyria and there were about as many symtoms as we have opinions here on this forum.

What symtoms are you talking about for Mary, George III and Princes Marg. which most of you seem to agree they may have had in common?

Purple urine?  Mood swings???

I and others know nothing about porphyria or "thyroxine deficiency"   so I'm just trying to get a grasp on all of this so I and others can understand.

Thanks.

AGRBear
« Last Edit: December 31, 1969, 06:00:00 PM by AGRBear »
"What is true by lamplight is not always true by sunlight."

Joubert, Pensees, No. 152

bluetoria

  • Guest
Re: Did Mary Stuart & descendants have porphyr
« Reply #21 on: January 09, 2005, 06:52:47 PM »
It seems to me that nowadays we have labels for everything. Everything has to fit a syndrome or something. In the past people were just 'under the weather' sometimes. This doesn't deny the possibility of an actual illness, just that it doesn't take into account individuality etc. Everything being so finely balanced in the human metabolism makes it impossible to make a clear diagnosis, don't you think?

Offline Martyn

  • Velikye Knyaz
  • ****
  • Posts: 7022
  • Martyn's Chips
    • View Profile
Re: Did Mary Stuart & descendants have porphyr
« Reply #22 on: January 10, 2005, 10:50:14 AM »
Isn't it rather unusual that there seems to be no link sufferer in between Victoria and William of Gloucester?  Does that mean that the gene was transmitted from father to son through three generations?  No female members affected?
'For a galant spirit there can never be defeat'....Wallis Windsor

'The important things is not what they think of me, but what I think of them.'......QV

Offline Helen_Azar

  • Velikye Knyaz
  • ****
  • Posts: 7472
  • Coming up Fall 2015: Tatiana's diaries and letters
    • View Profile
    • War-time diaries of Grand Duchess Olga Nikolaevna Romanov
Re: Did Mary Stuart & descendants have porphyr
« Reply #23 on: January 10, 2005, 10:56:56 AM »
Quote
It seems to me that nowadays we have labels for everything. Everything has to fit a syndrome or something. In the past people were just 'under the weather' sometimes. This doesn't deny the possibility of an actual illness, just that it doesn't take into account individuality etc. Everything being so finely balanced in the human metabolism makes it impossible to make a clear diagnosis, don't you think?
 I think that there really is a physiological reason to explain everything, except that it often affects different people in different ways because of individual physiological factors involved. Now that statement just really explained everything!  ;) ;D

Offline Helen_Azar

  • Velikye Knyaz
  • ****
  • Posts: 7472
  • Coming up Fall 2015: Tatiana's diaries and letters
    • View Profile
    • War-time diaries of Grand Duchess Olga Nikolaevna Romanov
Re: Did Mary Stuart & descendants have porphyr
« Reply #24 on: January 10, 2005, 10:58:32 AM »
P.S. I am pretty sure, based on reliable sources, that Pss Margaret didn't have it...

Offline Martyn

  • Velikye Knyaz
  • ****
  • Posts: 7022
  • Martyn's Chips
    • View Profile
Re: Did Mary Stuart & descendants have porphyr
« Reply #25 on: January 10, 2005, 11:01:26 AM »
Quote
 I think that there really is a physiological reason to explain everything, except that it often affects different people in different ways because of individual physiological factors involved. Now that statement just really explained everything!  ;) ;D


Good grief my head is spinning now!
'For a galant spirit there can never be defeat'....Wallis Windsor

'The important things is not what they think of me, but what I think of them.'......QV

Offline AGRBear

  • Velikye Knyaz
  • ****
  • Posts: 6611
  • The road to truth is the best one to travel.
    • View Profile
    • Romanov's  Russia
Re: Did Mary Stuart & descendants have porphyr
« Reply #26 on: January 10, 2005, 11:51:55 AM »
Yes, Helen,  that was great.   ;) ;D

A Laughing Bear
"What is true by lamplight is not always true by sunlight."

Joubert, Pensees, No. 152

Offline ChristineM

  • Moderator
  • Velikye Knyaz
  • *****
  • Posts: 2882
    • View Profile
Re: Did Mary Stuart & descendants have porphyr
« Reply #27 on: January 10, 2005, 03:09:48 PM »
Dear Helen

You are absolutely right - a great deal depends, not only on the severity of the illness, but on an individual's ability to cope with it.   It is known to skip generations and there is a number of precipitants, e.g. a change of diet, or through use of certain drugs.   Alchohol is a major contributor.

I brought up the topic of Princess Margaret and porphyria in response to Martyn's question after discovering it was Princess Margaret's own biographer, James Brough, who raised the possibility of her suffering from porphyria.   It would be interesting to know the identity of your own 'reliable source'.   I think it unlikely she suffered from porphyria.   This is an uninformed opinion.

Porphyria is a horrible disease manifested by many and various symptoms.   I am sure you will agree it should not  be dismissed as just 'feeling under the weather' and is in no way amusing.   Sufferers are frequently labelled as hypochondriacs which is cruel in the extreme, since, in its severest form, it is extremely distressing and dibilitating both for the victim and for their carer.  

tsaria  


Offline Helen_Azar

  • Velikye Knyaz
  • ****
  • Posts: 7472
  • Coming up Fall 2015: Tatiana's diaries and letters
    • View Profile
    • War-time diaries of Grand Duchess Olga Nikolaevna Romanov
Re: Did Mary Stuart & descendants have porphyr
« Reply #28 on: January 10, 2005, 04:36:00 PM »
Quote
 It would be interesting to know the identity of your own 'reliable source'.  
 
Hi tsaria,

I sometimes correspond via email with Margaret's authorized biographer, who was also a friend of hers for many years before her death. I once asked him about Margaret having porphyria because I heard that she may have had it. According to Margaret herself, she did not have it, and it doesn't seem that she would have had any reason to cover that up...  

« Last Edit: December 31, 1969, 06:00:00 PM by helenazar »

Offline ChristineM

  • Moderator
  • Velikye Knyaz
  • *****
  • Posts: 2882
    • View Profile
Re: Did Mary Stuart & descendants have porphyr
« Reply #29 on: January 10, 2005, 05:15:26 PM »
Thanks for that Helen.   As I said, I doubted she had porphyria.   Goodness knows she was plagued, especially in her latter years, with major, non-porphyria associated illness.

tsaria