Author Topic: So WHY would it not have been hemophilia?  (Read 106260 times)

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Offline Kimberly

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Re: So WHY would it not have been hemophilia?
« Reply #300 on: June 24, 2005, 01:58:43 PM »
P.S congenital means that you are born with it,acquired means it is something that has develpoed later in life.
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Offline lexi4

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Re: So WHY would it not have been hemophilia?
« Reply #301 on: June 24, 2005, 02:34:36 PM »
Thank you bear, for bringing some logic into this discussion. I am aware of JK's credentials and know that he is not a doctor. I know nothing of Lisamericaox's medical credentials. It's all good. They both make valid points.
Maybe one place to go from here, is to start a list of all of Alexei's symptons? Then we can group them by disease.
Lisamericaox has given us a place to start with the guidelines she has posted. I'll start researching symptons.
Life is not a journey to the grave with the intention of arriving safely, in a pretty and well preserved body; but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming, "Wow ---- What a ride!!!"

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Re: So WHY would it not have been hemophilia?
« Reply #302 on: June 24, 2005, 02:46:49 PM »
Anyone here ever sprained their wrist or ankle and also had a mild virus at the same time?  You get a FEVER.

I once had a pulled hamstring and at the same time caught a cold...got a fever.

Once I had a plantar wart on my foot and also had a slight fever due to stomach flu.

Once I stubbed my toe and also had a headache.

Recently I had a hangnail AND a sore throat.....

Offline Kimberly

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Re: So WHY would it not have been hemophilia?
« Reply #303 on: June 24, 2005, 02:53:04 PM »
Spot on Finelly, well said
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Offline Forum Admin

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Re: So WHY would it not have been hemophilia?
« Reply #304 on: June 24, 2005, 03:42:30 PM »
I have an idea. Instead of "armchair diagnosis" by non trained non-physicians, lets see what a few TRAINED Hematologists, who know HOW to diagnose Hemophilia,  have to say:

"History's most famous person with haemophilia, the Tsarevitch Alexei, had almost reached his likely lifespan of 20 years when he was murdered in 1917. His frequent crippling haemarthroses and muscle bleeds are obvious from photographs." Haemophilia -- darkest hours before the dawn authored by Alison M Street, Head, Haematology Unit, Alfred Healthcare Group, Melbourne, VIC and Henry Ekert Senior Consultant, Department of Haematology/Oncology, Royal Children's Hospital, Melbourne, VIC  in
Medical Journal of Australia,1996; 164: 453

" Haemophilia is sometimes referred to as the Royal disease. Queen Victoria had no ancestors with the condition but soon after the birth of her eighth child, Leopold, in 1853 it became evident that he had haemophilia. Queen Victoria was thus an example of how the condition can arise as a spontaneous mutation. Leopold's medical condition was reported in the British Medical Journal in 1868...It also subsequently transpired that two of Queen Victoria's own daughters, Alice and Beatrice, were carriers of haemophilia. The condition was transmitted through them to several Royal families in Europe, including Spain and Russia. Perhaps the most famous affected individual was the son of Tsar Nicholas II of Russia. "The history of haemophilia" by Dr. P.L.F. Giangrande, Nuffield Dept. of Medicine, Oxford University, citing "The history of haemophilia." Ingram GIC. Journal of Clinical Pathology 29: 469-479 (1976)

"For a month or so all seemed well with little Alexis, but it was then noticed that the Tsarevitch was bleeding excessively from the umbilicus (a relatively uncommon feature of haemophilia.  At first the diagnosis was not admitted by the parents, but eventually the truth had to be faced although even then only by the doctors and immediate family. Alix was grief stricken: ‘she hardly knew a day’s happiness after she realized her boy’s fate’. As a newly diagnosed carrier she dwelt morbidly on the fact that she had transmitted the disease. ... Whilst the army commanders begged the Tsar to stand down, Nicholas questioned his physician, Dr Federov,about his son’s future. Federov summed up the state of haemophilia in the early twentieth century. ‘Science teaches us, Sire, that this is an incurable disease. Yet those who are afflicted will sometimes reach an advanced old age. Still, Alexis Nicolaivich is at the mercy of an accident’. "
THE HISTORY OF HAEMOPHILIA IN THE ROYAL FAMILIES OF EUROPE, British Journal of Haematology, 1999, 105, 25–32.Dr Richard F. Stevens, Consultant Paediatric Haematologist, Royal Manchester Children’s Hospital, Manchester.

"Although the type of hemophilia, hemophilia A or hemophilia B, is not known, the occurrence of hemophilia in the family of the last Tsar of Russia and other descendants of Queen Victoria through the maternal lines is well documented (McKusick, 1965)."  Online Mendelian Inheritance in Man, Johns Hopkins University. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?/cmd=Search&db=OMIM&doptcmdl=Detailed&term=?306700#306700_HISTORY

I could go on. Oh, but wait, these people DON'T KNOW what they are talking about, that's the point of this discussion I think.  ???
« Last Edit: December 31, 1969, 06:00:00 PM by admin »

Finelly

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Re: So WHY would it not have been hemophilia?
« Reply #305 on: June 24, 2005, 04:24:21 PM »
Geez, Forum Admin.......just where do you get off quoting scientific journals and physicians who actually TREATED Alexei?

<sheesh>

Offline etonexile

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Re: So WHY would it not have been hemophilia?
« Reply #306 on: June 24, 2005, 05:50:33 PM »
Our FA is the best....dead brilliant....I bow....

Offline AGRBear

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Re: So WHY would it not have been hemophilia?
« Reply #307 on: June 24, 2005, 06:17:22 PM »
Because we're asking questions doesn't mean we are not going to come to the same conclusion as the doctors Forum Admin. has provided in her post.

I think all too often some posters forget that many of us are  here  just to chit-chat and learn something we didn't know yesterday.

I for one know very little about hemophilia and the medical records of Alexei or who has studied what is available.

When I read JKendricks questions,  these questions caused me to think about the fact that doctors back in 1917 didn't know what we know today, so, why couldn't Alexei had a different blood disorder?

Apparently, there is a difference of opinion.

This makes a good debate.

And, I don't believe I've voiced that the doctors of today who have studied Alexei's medical records are incorrect.  Why would I?  I didn't know anyone had.   From what I've understood none of the medical records had survived.  As for photographs of Alexie's  bruises,  I had never heard of these either.

So, please,  help those of us to learn more so we can be better informed.

Now, I'm off to read some of these articles mentioned by other posters.  I am looking for the answer about Alexei having a raise  temperature with his bouts of bleeding and if this is or is not a common symptom of one suffereing hemophilia.  

Oh, and, thanks for explainations on the other stuff.

Data from Forum Admin's post: >>"For a month or so all seemed well with little Alexis, but it was then noticed that the Tsarevitch was bleeding excessively from the umbilicus (a relatively uncommon feature of haemophilia.<<  

Is it still an "uncommon feature"?

AGRBear

 
« Last Edit: December 31, 1969, 06:00:00 PM by AGRBear »
"What is true by lamplight is not always true by sunlight."

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Offline etonexile

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Re: So WHY would it not have been hemophilia?
« Reply #308 on: June 24, 2005, 06:36:12 PM »
Yes..let's see how carefully and distinctly we can analyse Alexei's symptoms...I'm not a doctor...but I want to understand....

Offline lexi4

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Re: So WHY would it not have been hemophilia?
« Reply #309 on: June 24, 2005, 09:17:11 PM »
Quote
Yes..let's see how carefully and distinctly we can analyse Alexei's symptoms...I'm not a doctor...but I want to understand....

Ditto.
I am reading through books looking for those symptons, which I will post.
Life is not a journey to the grave with the intention of arriving safely, in a pretty and well preserved body; but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming, "Wow ---- What a ride!!!"

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Re: So WHY would it not have been hemophilia?
« Reply #310 on: June 24, 2005, 10:03:01 PM »
Quote
Because we're asking questions doesn't mean we are not going to come to the same conclusion as the doctors Forum Admin. has provided in her post.

AGRBear

 Â 
Dear Bear
There is some difference of opinion on some points, but last I checked in the shower, Forum Admin is "his post" not "her post".
;D
« Last Edit: December 31, 1969, 06:00:00 PM by admin »

Finelly

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Re: So WHY would it not have been hemophilia?
« Reply #311 on: June 24, 2005, 10:36:05 PM »
Dear Forum Admin - without your word on the subject, how are we to KNOW and BELIEVE that you are a "he"?  What objective proof can you provide?  

Offline RussiaSunbeam1918

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Re: So WHY would it not have been hemophilia?
« Reply #312 on: June 24, 2005, 10:51:01 PM »
Lol, I'm pretty sure FA is too clever to lie about something such as gender... ;) but yeah, this post proves how "proff" is everything these days.  ::)

-Dana
« Last Edit: December 31, 1969, 06:00:00 PM by RissiaSunbeam1918 »

Finelly

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Re: So WHY would it not have been hemophilia?
« Reply #313 on: June 24, 2005, 11:17:25 PM »
<narrowing eyes....>  And are we really sure he IS Forum Administrator?  That's an odd name........he could be someone PRETENDING to be him.....we should ask for a DNA test.

Offline RussiaSunbeam1918

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Re: So WHY would it not have been hemophilia?
« Reply #314 on: June 24, 2005, 11:51:05 PM »
Yeah, and then we need to find his REAL DOCTOR to tell us all about FA and give us quotes to post.....and you know, DNA tests might not be proof enough.....but anything to make sure nobody is out there claiming to be our FA.  ::) ;)